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2010Living with Hemophilia: An interview with Mark SkinnerWFH President Mark Skinner shares his personal experience of living with hemophilia and shows how he treats the disorder with an infusion of clotting factor concentrate.
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This WFH video podcast features a conversation about Health Technology Assessment (HTA) and Comparative Effectiveness Research (CER). Hosting the discussion is Brian O’Mahony, past president of the WFH. He is joined by Dr. Michael Lauer of the National Heart, Blood and Lung Institute (USA), and health economist Adam Hutchings (UK).
Over the past 20 years, many developed countries have been able to provide an ample supply of factor concentrates for hemophilia treatment, with prophylaxis available for children and many adults. However, with the global economic recession, this environment is changing. HTA and CER measures are gaining in use as governments evaluate healthcare policies and make decisions about healthcare spending, presenting both challenges and opportunities to patient organizations and clinicians.
2006-2008
WFH: The Cornerstone of Global Development, 45 Years of Progress
WFH President Mark Skinner describes the organization’s progress in achieving Treatment for All people with hemophilia and other bleeding disorders around the world over the past 45 years. Video
WFH launches its first television announcement (April 2007)
The WFH has created its first television Public Service Announcement (PSA) to help raise awareness about hemophilia. Video
Treatment for All – President’s Address (May 2006)
President Mark Skinner outlines the WFH’s strategic vision of Treatment for All “ that one day, treatment will be available for all those with inherited bleeding disorders around the world. Video
Last Updated April 2011