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Videos
Training Modules
IHTC training modules
Price List and Order Form (members
and non-members)
Annual Report
Annual Report 2010
[English]
Congress Abstracts, Papers, and Proceedings
World Hemophilia Congress
[English]
2010
XXIX International Congress of the WFH, Buenos Aires, Argentina
10-14 July, 2010.
State of the Art Book: Haemophilia, July 2010, Volume 16 Suppl. s5
Book of Abstracts: Haemophilia, July 2010, Volume 16 Suppl. s4
2008
XXVIII International Congress of the WFH, Istanbul, Turkey
1-5 June 2008
[English & Español - CD-ROM].
State of the Art Book: Haemophilia, July 2008, Volume 14, Issue S3 Book of Abstracts: Haemophilia, May 2008, Volume 14, Issue S2
2006
XXVII International Congress of the WFH, Vancouver, Canada
21-25 May, 2006
[English & Español - CD-ROM].
State of the Art book:
Haemophilia, Volume 12, Issue s3
Book of Abstracts:
Haemophilia, Volume 12, Issue s2
2004
XXVI International Congress of the WFH, Bangkok, Thailand
17-21 October, 2004 [English & Español - CD-ROM].
State of the Art Book: Haemophilia, Volume 10,
Issue s4
Book of Abstracts: Haemophilia, Volume 10, Issue
s3
2002
XXV International Congress of the WFH, Seville, Spain
19-24 May 2002 [English & Español - CD-ROM].
State of the Art Book: Haemophilia, Volume 8, Issue 3
Book of Abstracts: Haemophilia, Volume 8, Issue 4, 2002
Dental Care
Dental Management of Patients with Inhibitors to Factor VIII or
Factor IX; Treatment of Hemophilia monograph no. 45 [English]
Guidelines for Dental Treatment of Patients with Inherited Bleeding Disorders; Treatment of Hemophilia monograph no. 40 [English]
Oral Care for People with Hemophilia or a Hereditary Bleeding Tendency; Treatment of Hemophilia monograph no. 27 [English]
Diagnosis and Treatment
(see also Dental Care, Gene Therapy, Genetic Counselling/Carriers, Haemophilia Journal, HIV, Hepaitis, Inhibitors, Musculoskeletal/Physiotherapy, Other Bleeding Disorders, von Willebrand/Women with Bleeding Disorders)
Acquired Hemophilia; Treatment of Hemophilia monograph no. 38 [English]
Assessment and management of pain in hemophilia patients; Treatment of Hemophilia monograph no. 53. New 2011 [English]
Circumcision in Hemophilia: An Overview; Treatment of Hemophilia monograph no. 30
[English]
Conduct in Clinical Trials;
Occasional Paper monograph no. 3
[English]
Diagnosis of Hemophilia and Other Bleeding Disorders: A Laboratory Manual. Second edition 2010
[English] [Français] [Español] [Chinese] [Russian]
Emergency Care Issues in Hemophilia. Treatment of Hemophilia monograph no. 43
[English]
Guide to Developing a National Patient Registry
[English] [Français] [Español]
[Arabic] [Chinese] [Russian]
Guidelines for the Management of Hemophilia
[English] [Français] [Español]
[Chinese] [Russian]
Hereditary Plasma Clotting Factor Disorders and their Management; Treatment of Hemophilia monograph no. 4 [English]
International Medical Card [English]
Looking after the Veins; Treatment of Hemophilia
monograph no. 32
[English]
Mild Hemophilia; Treatment of Hemophilia
monograph no. 41
[English]
Protocols for the Treatment of Hemophilia and von Willebrand Disease;
Treatment of Hemophilia monograph no. 14 [English]
Symptomatic Carriers of Hemophilia; Treatment of Hemophilia monograph no. 46 [English]
The Challenge of An Ageing Haemophilic Population; Treatment of Hemophilia monograph no. 51. 2010 [English]
The IHTCs of the World Federation of Hemophilia: A 30-Year Review; Occasional
Paper monograph no. 2
[English]
The WFH Hemophilia Centre Twinning Programme: Ten Years of Growth; Occasional
Paper monograph no. 4
[English]
Treatment Options in the Management of Hemophilia in Developing Countries; Treatment of Hemophilia monograph no. 37
[English]
General Guides
Exercises for People with Hemophilia
[English] [Français] [Español] [Russian]
[Chinese]
Go For It! (Atrévete)
[English/Spanish - Print only]
Growing Up with Hemophilia: Four Articles on Childhood
[English]
Hemophilia in Pictures
[English; Español; Français; Arabic; Russian; Chinese]
Hemophilia in Pictures Educator's Guide
[English] [Français] [Español]
[Arabic] [Chinese] [Russian]
Hemophilia playing cards: A new educational tool for children with hemophilia (print only) 2010
What Are Inherited Platelet Function Disorders? New 2011 [English]
What Are Inhibitors?
[English] [Français] [Español] [Arabic] [Chinese] [Russian]
What Are Rare Clotting Factor Deficiencies?
[English] [Français] [Español] [Arabic] [Chinese] [Russian]
What Is Hemophilia?
[English]
[Español]
[Français]
[Arabic]
[Russian]
[Chinese]
What Is von Willebrand Disease?
[English] [Español]
[Français]
[Arabic]
[Russian]
[Chinese]
Gene Therapy
Gene Therapy for the Hemophilias;
Treatment of Hemophilia monograph no. 18 [English]
Genetic Counselling / Psychosocial Issues
Genetic Counselling for Hemophilia; Treatment of Hemophilia monograph no. 25
[English]
Psychosocial Care for People with Hemophilia; Treatment of
Hemophilia monograph no. 44
[English]
Haemophilia Journal (the official journal of the WFH)
Haemophilia Journal
[English]
Hemophilia Organization Resources
Action Planning; Hemophilia Organization
Development monograph
no. 2. Revised 2010 [English]
An Introduction to Key Concepts in Health Economics for Hemophilia Organizations; Hemophilia Organization
Development monograph
no. 11. 2010 [English]
Developing and Sustaining an Effective Lobbying Campaign; Hemophilia Organization Development monograph no. 9
[English]
Fact Sheets for Government Advocacy:
Fundraising; Hemophilia Organization Development monograph no. 7
[English]
Good Governance; Hemophilia Organization Development monograph no. 8
[English]
Group Dynamics and Team Building; Hemophilia Organization Development monograph no. 4 [English]
Hemophilia Societies: Challenges and Development; Hemophilia
Organization Development monograph no. 1. Revised 2011 [English]
Improving Care Beyond our Borders: A Twinning Guide for Hemophilia Treatment
Centres
[English]
Long-Term Planning for Leadership Change; Hemophilia
Organization Development monograph no. 6
[English]
Making Your Case Effectively: A Guide to Government Relations; Hemophilia Organization Development monograph no. 5
[English]
Media Relations; Hemophilia Organization Development monograph
no. 10 [English]
Patient Outreach Guide for Hemophilia and Other Bleeding Disorders.
[English] [Français] [Español]
[Chinese] [Russian]
[Arabic] (large file - 15MB)
Reaching Beyond our Borders: A Twinning Guide for Hemophilia Organizations
[English]
Recruiting and Retaining Volunteers; Hemophilia Organization Development monograph no. 3
[English]
Hemophilia World
Current Issue
[English]
Past Issues
[English]
Subscription Form
[English]
Human Immunodeficiency Virus (HIV) / Hepatitis C (HCV)
Conception in HIV Discordant Couples;Treatment of Hemophilia monograph no. 26 [English]
HIV and HCV Co-infection in Hemophilia; Treatment of
Hemophilia monograph no. 31 [English]
HCV-related Liver Cancer in People with Haemophilia; Treatment of
Hemophilia monograph no. 52. New 2011 [English]
The tragic history of AIDS in the hemophilia population, 1982–1984; Occasional Papers monograph no. 6 [English]
Inhibitors
Diagnosis and Management of Inhibitors to Factors VIII and IX: An Intro
Discussion for Physicians;
Treatment of Hemophilia monograph no. 34
[English]
Inhibitors in Hemophilia: A Primer; Treatment of Hemophilia monograph no. 7 [English]
What Are Inhibitors?
[English] [Français] [Español] [Arabic] [Chinese] [Russian]
Musculoskeletal / Physiotherapy
Articular Bleeding (Hemarthrosis) in Hemophilia: An Orthopedist's Point of View; Treatment of
Hemophilia monograph no. 23 [English]
Chronic Hemophilic Synovitis: The Role of Radiosynovectomy;
Treatment of Hemophilia monograph no. 33
[English]
Exercises for People with Hemophilia [English]
Joint Replacement Surgery in Hemophilia; Treatment of
Hemophilia monograph
no. 50. 2010 [English]
Manufactured Shoes and Orthopedic Shoes; Treatment of Hemophilia monograph no. 2 [English]
Musculoskeletal Complications of Hemophilia: The Joint; Treatment of
Hemophilia monograph no. 6
[English]
Rehabilitation of Muscle Dysfunction in Hemophilia; Treatment of Hemophilia
monograph no. 24
[English]
The Treatment of Hemophilia Bleeding with Limited Resources;
Treatment of Hemophilia monograph no. 1
[English]
Other Bleeding Disorders
Factor XI Deficiency and Its Management;
Treatment of Hemophilia monograph no. 16 [English]
Platelet Function Disorders;
Treatment of Hemophilia monograph
no. 19 [English]
The Rare Coagulation Disorders; Treatment of Hemophilia monograph no. 39 [English]
Safety and Supply
(See also Treatment Products,
Human Immunodeficiency Virus, Hepatitis C, and variant Creutzfeldt-jakob Disease)
Guide for the Assessment of Clotting Factor Concentrates. Second edition. [English]
Proceedings of the WFH Global Forum on the Safety and Supply of Hemophilia
Treatment Products
Montreal, Canada, 2009
Montreal, Canada, 2007
Montreal, Canada, 2005
Budapest, Hungary, 2003
[2000 and 2002 in Print Only]
The Safety of Plasma-Derived Versus Recombinant Concentrates; Occasional Papers monograph no. 5
[English]
Transmissible Agents and the Safety of Coagulation Factor Concentrates; Facts and Figures monograph no. 7
[English]
Statistics
WFH Report on the Annual Global Survey 2010 New
A Study of Variations In the Reported Hemophilia A Prevalence Around the World; Facts and Figures monograph no. 8. 2010 [English]
A Study of Variations in the Reported Haemophilia B Prevalence Around the World; Facts and Figures monograph no. 10. New 2011 [English]
Treatment Centre Directories
International Hemophilia Training Centre Directory
[English]
Passport: Global Treatment Centre Directory
[English]
Treatment Products
(See also Safety and Supply)
A Study of Reported Factor VIII Use Around the World; Facts and Figures
monograph no. 9. New [English]
A Study of Reported Factor IX Use Around the World; Facts and Figures
monograph no. 11. New 2011 [English]
Contract Fractionation; Facts and Figures
monograph no. 5 [English]
Desmopressin (DDAVP) in the Treatment of Bleeding Disorders: The First 20 Years; Treatment of Hemophilia
monograph no. 11
[English]
Fibrinolytic Inhibitors in the Management of Bleeding Disorders; Treatment of Hemophilia monograph no. 42 [English]
Guide to National Tenders for the Purchase of Clotting Factor Concentrates [English]
Key Issues in Hemophilia Treatment. Part 1: Products; Facts and Figures
monograph no. 1
[English]. Part 2:
Organizing a National Programme for Comprehensive Hemophilia Care
; Facts and Figures monograph no. 1 [English]
Local Hemostatic Blood Products: Fibrin Sealant and Platelet Gel; Treatment of
Hemophilia monograph no. 36 [English]
Registry of Clotting Factor Concentrates. Eight edition, 2008;
Facts and Figures monograph no. 6
[English]
Small Pool Heat Treated Intermediate Purity Factor VIII Concentrate; Facts and Figures monograph
no. 3
[English]
The Preparation of Single Donor Cryoprecipitate; Facts and Figures monograph no. 2
[English]
Variant Creutzfeldt-Jakob Disease (VCJD)
Creutzfeldt-Jakob Disease; Treatment of
Hemophilia monograph no. 49 [English]
Creutzfeldt-Jakob Disease and Hemophilia: Assessment of Risk; Treatment of
Hemophilia monograph no. 15
[English]
vCJD and Haemophilia: A Risk Assessment of Plasma-derived Products
[English]
Von Willebrand Disease / Women with Bleeding Disorders
Protocols for the Treatment of Hemophilia and von Willebrand Disease;
Treatment of Hemophilia monograph no. 14 [English]
Reproductive Health in Women with Bleeding Disorders; Treatment of Hemophilia monograph no. 48 [English]
Symptomatic Carriers of Hemophilia; Treatment of Hemophilia monograph no. 46 [English]
The Basic Diagnosis and Clinical Management of von Willebrand Disease; Treatment of Hemophilia monograph no. 35 [English]
von Willebrand Disease:
An Introduction for the Primary Care Physician; Treatment of Hemophilia monograph no. 47 [English]
What is von Willebrand Disease?
[English] [Español]
[Français]
[Arabic]
[Russian]
[Chinese]
WHO- WFH Publications
Guidelines for the Development of a National Programme for Haemophilia
[English - Print only]
Prevention and Control of Haemophilia: Memorandum from a Joint WHO/WFH Meeting
[English - Print only]
Report of a Joint WHO/WFH/ISTH Meeting: Delivery of Treatment of Haemophilia
[English]
Report of a Joint WHO/WFH Meeting: Control of Haemophilia: Haemophilia Care in
Developing Countries
[English - Print only]
Report of a Joint WHO/WFH Meeting on the Control of Haemophilia: Modern
Treatment of Haemophilia
[English - Print only]
Publications Distributed by the WFH
Aging with Haemophilia: Medical and Psychosocial Impact. 2007
Emotional Support in Hemophilia.
2000
Fit for life – A Guide to Fitness, Games, Sports and Dance for People with Hemophilia. 2004
Genetics of Hemophilia A and B. Carol K. Kasper & Carolyn H. Buzin. 2007
Hemofilia. 2001
Living with Haemophilia. Fifth edition. 2002
Rare Bleedings in Haemophilia. 2002
Therapeutic Algorithms of Muscular Skeletal Complications of Hemophilia. 2006
Von Willebrand Disease: An Introductory Discussion for Young Physicians. 2004
Last Updated March 2012
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